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View Readers Comments
My husband was recently diagnosed with rectal and lung cancer. We will be starting treatments in the morning at the cancer center in Fort Worth. He has very bad inphysema with a 16% lung capacity so surgery is out of the question. He also has diabetes and an ileostomy. He is a
double amputee (his right arm and leg) due to a bad reaction to a drug given himin the hospital in 2002 when he was having caratoid artery surgery. He also had a number of strokes at that time. He was not expected to live but he is a very strong willed man. He still has a great sense of humor as we face each of these new roadblocks. We have a son that lives with us and helps us with all the trips to the different drs. He is 18 and has been doing it since he was 15.Quite an outstanding young man. He graduated last june and now works two jobs to help us and to try to get back into school. We have survived because of love and God.
fay broyles <royb_38@yahoo.com>
for worth, tx USA - Monday, February 6, 2006 at 01:50:42
I am really touched by your amazing strength. My mother, Kathleen aged 68 is terminally ill. She was diagnosed in July 2005 with cancer in the pancreas, liver and lungs. I am very close to my mother. I am finding it very difficult to come to terms that my mother is dying. She is up and about every day even though her body tells her it is shutting down. I have not read your book yet, but I am going to buy it in the next few days.
Paula Moore <paulamoore1>
Ireland - Tuesday, January 31, 2006 at 04:30:49
I am 17 years old and my dad was diagnosed with terminal cancer four and a half years ago. It is now coming to the end of his long fight, but I thank God everyday that he has made it this long. Your website is awesome and it helps me realize that there are people out there that understand exactly what I am feeling. I am my dad's caregiver. It is just him and I. My mother hasn't been int he picture since I was three. If you would like to talk.. please email me.
Thank you.... Alison
Alison Carroll <acarroll@brackett.k12.tx.us>
Brackettville, Tx U.S. - Wednesday, January 25, 2006 at 04:21:00
HI, In 1997 I was diagnosed with Leukaemia (AML) after going into remission which I have been very fortunate to stay for 8 years and going strong. I havesince going into remission been diagnoed with Hemochromotosis after much blood letting we got that under controle but then last friday 6-1-06 I was told that I had asbestosis, were from here I dont know. I am thankful to find your web sight it is great to know that suport is there. thank you.
Robert
Robert McDougall <bobmac57@msn.com>
Newcastle, nsw Australia - Monday, January 9, 2006 at 07:33:55
I have just finished re-reading your book 'Lean on Me' for the third time after purchasing it early in 2005. My husband was diagnosed with mesothelioma in 2003 and died in November 2005 and despite excellent medical help endured agonizing pain for the last 12 months of his life. Your book helped both of us - as a support (we were not alone in our experience) - and as a point of reference (regarding symptoms and pain management). Thank you.
Kate Pointon <obpoint@ozemail.com.au>
Avalon, NSW Australia - Monday, January 2, 2006 at 10:35:50
I ordered your book in Sept.after my brother-in-law was diagnosed with Mesothelioma. He died on the 16th of Dec. Your book helped us so much to know what to expect and allow him to die at home. We were with him 'til the end. Thank you for your book and the love you have, to share your pain with all of us. God continue to bless you.
Lou Ellen Howell <leh@alltel.net>
Hiawassee, Ga USA - Tuesday, December 27, 2005 at 10:22:10
i really want to read your book, because i find it amazing how someone can just come out and tell the world in their own words what is like to live with or have to go through watching someone with cancer. I personally don't know what it is like but right now my grandpa and my grandma both have cancer, and my grandmas doing well but my grandpa is..well not doing to well. But i am really looking forward to reading it. And god bless you.
meghan mcnamara <crawling_back_2u@hotmail.com>
toronto, canada - Saturday, December 24, 2005 at 13:03:37
I am looking forward to the arrival of your book. My husband has stage 3 prostrate cancer. Surgery and radiation have been unsucessful and the prognosis is not good. My main concern to is his quality of life over the next few years we have together and any inspirations that your book may offer will assist me with my goal. It is a challenging goal, but one I must face and overcome. God bless you for publishing such a book. No can best describe this journey, unless you are living or have lived it.
Donna Mighton <donnamighton@cha.ab.ca>
Fort Saskatchewan, Canada - Friday, December 2, 2005 at 23:53:30
What a wonderful site. I too lost my husband John on January 9th 2005. He fought so hard for 2 years and 2 months. He was 55 and we had been married 34 years. I miss him so much, I am really lost without him.
Anne <thequinns17@hotmail.com>
Dublin , Ireland - Friday, December 2, 2005 at 09:08:41
I just stumbled on to your book site and was interested because of your experience with Mesothelioma. I wanted to share that I also was given only a few months to live, in 1996. I have survived two other cancers unrelated to the Meso. So it is possible to live longer than a couple of months with cancer. We must continue to try to "live" with the cancer and not "die" from it. It is a rough road and I continue to find new paths to follow. Keep the faith! Thank you for sharing your story! ^j^
Jill Vaughn <jillypooo@yahoo.com>
TX USA - Wednesday, November 30, 2005 at 23:05:25
I think this is wonderful of you to write this book. I am sure it will be, and has been a great help to many people.
Author J. Renee North <jrnorth@core.com>
Sidney, Oh USA - Monday, November 28, 2005 at 10:08:03
Really awe inspiring web site,great to know you had the courage to write the book,Is it obtainable in Spain?
I lost my Dad in 2000 after a short fight with cancer and like other guests on your comment book it does affect the whole family.
Thanks for this web site !
mark <llanodelosolleres2003@yahoo.co.uk>
Albox, Spain - Friday, November 4, 2005 at 16:54:35
This is a great site. It helps to know you are not alone.
My Dad was diagnosed in Oct 2002.
Was told he had just a few months. Fought it as best he could. But we lost him on Dec 20th 2004.The helplessness at watching people you love slip away is so hard.It really helps to talk to others who know what you are going through.
Keep up the great work.
Traci
- Sunday, October 23, 2005 at 04:21:26
My boyfriend has mesothelioma and has been told he has 6 months. I am afraid and hope your book will help me through this and what to expect.
Red Hood
- Friday, October 21, 2005 at 19:59:24
I plan on buying your book after reading your site. I emailed you already. My husband passed in 2003 and I have recently been diagnosed with bilateral interstitial fibrosis. Please continue the fight for cancer victims and helping them become educated in what to expect or do when confronted with this terrible disease.
Rise Davis <ctr80705@centurytel.net>
Avon, Oh United States - Wednesday, October 12, 2005 at 11:09:50
i love your story...my papaw died of cancer...10 months ago..we were so close to him..I know he is in a better place now..but its still soo hard i am doing a research paper on cancer and everything that goes with it...i would love to hear the full story and details if you dont mind...the process what he went through we are going to find a cure...God will provide always remember that...
chelsey <chelsey_lou@excite.com>
greenville, tx us - Wednesday, October 12, 2005 at 10:38:37
I'm planning to buy your book and then read it before possibly giving to my dad if it will benefit him. I still cannot believe that I am watching my dad get dragged away by this and in our modern world we can't help him, very angry.
Darren Birchall <dbvb@optusnet.com.au>
Melbourne, vic Australia - Tuesday, October 11, 2005 at 18:49:35
book looks good. Is it easy to obtain in UK?
fran duncan <fcaduncan@hotmail.com>
Guisborough, England - Monday, October 10, 2005 at 21:33:42
YOU ARE AN INSPIRATION! I HAVE NEVER PERSONALLY KNOWN ANYONE WITH CANCER,IVE HAD MULTIPLE SCLEROSIS SINCE 2/2000 & TYPE 1 DIABETES SCINCE3/1982,SO EVEN THOUGH I HAVE PROBLEMS,THANK YOU FOR BEIENG SO OPEN! MAY GOD BLESS YOU! IM 33 YEARS OLD & FEEL ALOT OLDER.
Tina Miller <crazyangel72@yahoo.com>
Freeport, IL USA - Saturday, October 8, 2005 at 03:45:49
What a blessing this site is. I came by to check it for adding to the Families Coping with Cancer Webring. Your site will truly be a blessed addition to the ring and an encouragement to the other members.
I thought you might like this link. It is another page of mine that is for Care Givers *_*
http://www.our.homewithgod.com/ewerluvd/momma_poem.htm
Thank you for being there for your husband to lean on...for meaning those vows and backing them with action even in the darkest valleys.
JMS
Jennifer Seest <EweRLuvd@lycos.com>
GA USA - Monday, October 3, 2005 at 23:47:53
I have been both a carer and now find I have cancer myself. When cancer hits a family it affects everyone not just the patient. I think of all the people it affects and send best wishes to you all. I also created a website at www.thefurrymonkey.co.uk - check it out if you have a moment and let me know what you think. It certainly helped to focus on something whilst undergoing chemo/radiotherapy and the awful side effects. Take care everyone ..... !!!
Karen Theobald
UK - Monday, October 3, 2005 at 00:17:45
Awaiting the arrival of your book and wanted to say thank you (in advance). It is wonderful when we can take our grief and use it to help others. God Bless You.
Lou Ellen Howell <leh@alltel.net>
Hiawassee, Ga USA - Sunday, October 2, 2005 at 06:52:40
MY HUSBAND WAS DIAGNOISED LAST JULY 2004 WITH RECTAL CANCER.HE HAS BEEN THROUGH ALOT THIS PAST YEAR BUT IS DOING REALLY WELL.IT HAS BEEN A LONG HARD ROAD FOR THE TWO OF US BUT I HAVE BEEN THERE EVERY INCH OF THE WAY AND FEEL ALOT STRONGER FOR IT,I AM ORDING YOUR BOOK AND THANK YOU.GOD BLESS YOU AND YOUR FAMILY.THANK YOU.
michele santos <ladybug82739@cs.com>
north dartmouth, ma united states - Saturday, October 1, 2005 at 11:01:03
I just lost my Mom to breast cancer Aug. 22, 2005 & am now going to loose my Dad of Esophageal cancer, Stage 4. He has just started chemo today, in hopes of slowing down & hopefully shrinking the tumors so they can do surgery, although his chances are slim (15%) to get rid of the tumor. He is still grieving for my Mom and now this! Iso want to get your book & read it. I hope that it will help me some.
i'm so sorry for your loss.
Debbie Ludwig <dizneenut@earthlink.net>
Lancaster, CA United States - Tuesday, September 27, 2005 at 09:01:23
Reading your guestbook was bvery interesting. I will definitely get a copy of yourr book, I do need help for my husband was diagnosed with small cell carcinoma of the right lung Feb. 2004 and it reappeared in June 2005 in the same spot as well as an additional spot in the lung and on the Left Adrenal Gland. I don't know how long I will have my husband at my side, but we have shared 42 years so far. I have been told by the physicians that small cell carcinoma is a very fast spreading disease and all I can do is give him all the love and support I have and be there for him. Thank you for letting me sign your guestbook in advance. Cheryl Metz
Cheryl Metz
- Tuesday, August 9, 2005 at 14:03:42
We have been in contact with more than 10,000.00 people requesting information and support over the past ten years. A book such as yours is an invaluable resource for caretakers
The Carcinoid Cancer Foundation, Inc.
Monica Warner, Director of Development <mewarner@carcinoid.org>
White Plains, NY USA - Thursday, August 4, 2005 at 20:39:47
I lost my mother just a year ago in August of 2004. One can never get over a loved ones death but loosing a mother is even harder!!! I miss her a lot. The doctor had predicted 6 months for her survival after trying all chemo treatments and none of them working for my mom. I haven't read your book yet, but will soon!!! Thanks for sharing your life with all of us!!!
Dilshad Anajwala <dil912@hotmail.com>
Columbus, OH USA - Wednesday, August 3, 2005 at 23:03:01
I've through similar journey but not to the same extent as my husband recoverd from his illness (Testicular cancer Stage 4). It's being an amazing journey to strengthend our love and commitment ofr each other and our kids. Your story is an inspriation to everyone and I honour your courage and wisdom to share it with others.
Josephine Majnoon
- Thursday, July 28, 2005 at 12:11:57
My girlfriend just died of breast cancer
on june 3rd. we had been fighting it for 7 years. it is so difficult to keep living without her. she was begging me to help her at the end. so I had them remove her breathing tube and fill her full of medication. I hope I stopped her suffering. I loved her so much and i will forever. I just keep thinking about the last few days, it was very painful.
Shawn Akervik <shawn.akervik@chsinc.com>
centerville, mn usa - Wednesday, July 20, 2005 at 03:22:23
My father has mesothelioma and it is sad to be suffering. Though as a family we can only try and relieve the pain for him. I have read the book and I must say that it was very helpful, and a true in sight into the courage that a carer goes thought. To you all th other people out there who are suffering ..be brave..and strong!
Mario Di Scerni <mdiscerni@icwa.wa.gov.au>
Yokine, WA Australia - Monday, July 18, 2005 at 14:28:42
I'm fifteen years old and my mother died in April at the age of 34 from CML (Leukemia). I know how it feels to lose someone who means life, who IS life for you, and I wish I could say something that would lessen the pain if even for a moment. There are so many people out there who are going through or have gone through similar situations and I find some comfort in our solidarity. I would really appreciate it if you would e-mail me and if anyone else who sees this would e-mail me too, I have a project that I'm starting and I dont know how elses to contact people, please, please, if you have a moment, judst e-mail me and I'll explain more.
This might not help you in the least, but just know (as I'm sure you do) that there are people who know loss of a distantly similar kind, and that my thoughts are with those people.
Lena Martinez <this.is.a.clever.e-mail@hotmail.com>
San Francisco, CA USA - Thursday, July 14, 2005 at 00:58:09
My mother is suffering from lung cancer and is in her last stage. One cannot just see your loved on dying in pain. You courageously went through all this.
Just reading few lines brought tears in my eyes. I wish I could get to read to book.
If you have a spare copy, I would be grateful if you could send the same to me
my address is :
MS ROSY PACHECO
GODS GIFT, A WING, 4TH FLOOR,
FLAT 402, N M JOSHI MARGE
LOWER PAREL, MUMBAI 400 013.
Rosy Pacheco <rosy@cipla.com>
Mumbai, Maharashtra India - Wednesday, July 13, 2005 at 14:29:34
Thank You so much. I have no one to turn to. Thank you for being here.
alberta cantres <alc2@pge.com>
san francisco, ca usa - Friday, July 8, 2005 at 05:18:42
My father has just been diagnosed with mesothelioma. We are in such shock as he is deteriorating rapidly. Seeing such a strong and healthy man in such agonising pain is killing me as his daughter. We appear to be getting no support from hospital as there appears to be nothing they can do. It is a living nightmare.
Janet Bate <janet.bate@heatons.co.uk>
Stockport, UK - Wednesday, July 6, 2005 at 19:31:21
My sister's husband has been diagnose with mesothelioma and she is suffering such misery she is crying all the time at what she is losing and seeing her husband going from a strong man to a very frail and thin man, it is horrendous to see. My feelings go to both and wish i could help them both more. She is my twin and my family and theirs are so close.
Tina Dale <tinadale@thepalms1.fsnet.co.uk>
Leicester, England - Saturday, June 25, 2005 at 22:55:18
thankyou for this website! my dad was diagnosed with terminal cancer just before christmas last year, and am finding it very hard to deal with. Just knowing that he may not be around to see me and my younger sister aged 14, get married and have children and just facing life with him not being there is so unfair. However your story has given comfort to me and has made me realise that I need to make the most of the time I have with my dad. Thankyou laura x
laura
- Thursday, June 23, 2005 at 04:39:39
I rcvd your book as a gift it became my bible it was so helpful. my husband died 25th of may 05 after suffering mesothelioma for 12 months
pat carter <stuart@carter 50.wanadoo.co.uk>
halifax , england - Wednesday, June 22, 2005 at 20:01:28
I am an RN with greater than 15 yrs experience with Palliative care. I have also nursed both parents through cancer, mum succumbed to stomach cancer and Dad to Lung cancer. I have lost 2 sets of grandparents, 7 aunts, 1 uncle, 1cousin to various cancers. The history is not good, despite all the modern advances in cancer treatment, no one in our family who has been diagnosed with cancer has survived more than 18 months from diagnosis. Even with my professional background, dealing with a loved one with a terminal disease is devastating. It really seems as though the person is lost to you long before they finally leave, and each day from the day of diagnosis to the last day is a day of grief and loss. There are lots of mixed emotions, you do not want to lose the person, but you do not want their sufferring to be prolonged and after a while you long for your own suffering as a carer to end and feel guilty for the thought. My farther died 6 months ago after a particularly hard fight and while I miss him dreadfully the pain I felt eased almost immediately. Before his death people expected me to be able to cope because of my professional background, the professional skills go out the window when the emotional involvment is so strong. one appears to be strong on the outside to try to hold everything together while on the inside, the grown child is longing for the days when daddy could make everything better. THanks for sharing you journey. I think it is a must for anyone working with palliative clients, there is a lot to be said for the old saying, you cannot understand the journey until you have walked at least a mile in my shoes. Even with all the community supports available, the family are the ones caring for the client for at least 20hours out of every24- it is physically and emotionally exhausting
Karen <kebsa1@dodo.com.au>
Adelaide, SA Australia - Saturday, May 14, 2005 at 03:43:29
I have purchased this book as a give to my sister-in-law. Her husband was diagnosed with lung cancer September 04. For a while we believed that the cancer went into remission after several chemo treatments & radiation. But now it has spread to his spine, and into the bones. I wish to give her this book to read, hopefully it will ease the pain and comfort her.
TRUDY ROSS <formwell@tpg.com.au>
BRISBANE, QLD AUSTRALIA - Friday, May 13, 2005 at 05:58:20
Many thanks for your wonderful encouragement. My husband was diagnosed with mesothelioma in June 2003 & was given 6 to 12 months by the consultant physician. He has had 6 chemo.cycles & a blood transfusion & remains quite well, nearly 2 years since the original diagnosis. He has asked to stay at home & I have placed an order for your book today.
My very sincere thanks.
Jillian M Davis <jilliandavis@dodo.com.au>
Sydney, NSW Australia - Wednesday, May 11, 2005 at 09:28:04
My close friend just lost his mom a few days ago to colon cancer and my grandmother has pancreatic cancer also. I was very blessed to be there when his mom left us to go to heaven because I have only gone to funerals and had not been there when someone I loved took their last breath. We loved her very much and have comfort knowing she is at peace. I thank you for this website. Unlimited support is always a good thing.
Renee <winifredsimmons@bellsouth.net>
Palm City, FL - Wednesday, April 27, 2005 at 00:55:39
I read your article at http://improvehomelife.com/Asbestos_Killed_My_Husband-14347.htm and I was quite moved. Thanks for sharing.
-Ron.
Ron
- Friday, April 22, 2005 at 00:34:21
What a delightful story of the love of a caregiver! My heartfelt wishes go out to you . . . my very best, Cary from West Texas
Cary Magness <cary@lubbockseniorsource.com>
lubbock, tx usa - Wednesday, April 13, 2005 at 08:03:47
Looking forward to reading your book as a carer as I have read so many on the patient
Enid Hewson
- Monday, March 28, 2005 at 17:57:48
I teach asbestos classes and I think that a movie could reach many more people. please E-mail me if your planning to make a movie.
David Thulin <dthulin@ctcbear.com>
Seattle, wa - Saturday, March 19, 2005 at 06:34:13
I WOULD LOVE TO BE ABLE TO READ YOUR BOOK. I LIVE IN SOUTH AFRICA AND MY FATHER HAS MESOTHELIOMA LUNG CANCER. I AM YET TO TRAVEL DOWN THAT ROAD THAT YOU HAVE ALREADY FINISHED YOUR JOURNEY
GOD BLESS YOU
BIANCA MURRAY <kean@veritec.co.za>
EAST LONDON, SA - Friday, March 4, 2005 at 17:16:00
I happened on this website and will purchase book. My husband was diagnosed with meso some 9 months ago and given months to live. He is determined to prove the medico's wrong and has changed his lifestyle, gone organic, taking chinese hebs, meditating and praying ona regular basis. We treat each new day as a blessing and try to have a good laugh everyday. He had a pleuradesis procedure last week but this has failed. So its back to the drawing board and onward and upward
Jennifer Day <jennifer@brownday.co.nz>
Auckland, New Zealand - Tuesday, March 1, 2005 at 09:35:34
Reiki is alternative therapy for cancer and mesothelioma, thanks for article.
Reiki <hector @ maestroreiki.com>
Santiago, Chile - Friday, February 4, 2005 at 06:53:09
this is my fierst time to gate in to your site and i will be very grate full to have your book to down loadig thanks very much
daniel worku <danielkeke19@yahoo.com>
addisababa, adissababa ethiopiya - Tuesday, January 18, 2005 at 01:18:31
Thank you for a very compelling and encouraging testimony of great honesty that will give much help to our folks who are going through our hospice bereavement "program".
Chaplain Denny Colvig
- Monday, December 6, 2004 at 21:27:36
thank you for your candor,.. your article helped me realize I am not alone.
Danyl <danyludet@aol.com>
Jackson, nj usa - Wednesday, November 17, 2004 at 10:53:14
I just lost my husband to lymphoma and experienced the most painful year of my life leading up to it. I was also with him all the way and feel stronger for the experience. But it was so difficult to see him suffer so much and to try so hard to live that I cannot erase the last month's images out of my mind. I pray for some sort of peace for this and to be able to remember him as he was in his healthy life.
donna foulger <donnamarie@socal.rr.com>
huntington beach, ca usa - Thursday, November 11, 2004 at 03:41:44
Thank you for sharing your experience, life is a gift to be shared, people are the most precious thing we have, and when we lose them life is so hard. God Bless X
Janie
UK - Tuesday, November 9, 2004 at 16:39:42
live life fully
sam <hello_bunnie15@hotmail.com>
central coast, nsw australia - Thursday, November 4, 2004 at 09:23:19
It is so comforting to know that there are others who understand and can help when something as devastating as this happens in our life. Thankyou for making feel like I have someone out there to turn to.
Rachelle <rachellencs@aol.com>
Watford, UK - Thursday, November 4, 2004 at 00:01:20
A very informative website for those affected by cancer, and in particular for the carer's of these family members and friends.
Janice Kalyniuk <business@janicekalyniuk.com>
Perth, WA Australia - Thursday, October 21, 2004 at 18:53:20
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